Charlie was such a special little boy, he has inspired so many of us to get up of our butts and try and do something to help other families who are going through the same. He has given us all a reason to get up each day and get out there and fight for what is right. I don't think any of us ever imagined that we would ever be doing what we are, to be honest I don't think any of us thought we could ever do what we have done.
Normally people who inspire others to try and make changes have usually been on earth for much longer than 19 minutes, this just goes to show how important Charlies life was to us.
Carrie was really let down by the professionals who should have been there to help her on her journey through grief. We have since found out that we are not an isolated case. It breaks my heart to think of all the families out there who have lost a child,whatever the age, and have not received the care and support they deserve.
Watching Carrie struggle to come to terms with what was going on around her was so upsetting for all of us, we were all there for her but we didn't always know what to say to her. Sometimes nothing needed to be said. In a way we were lucky, we had each other. There are many people out there who do not have the support of a family and friends and then they are let down by the services who should be there for them.
Because of all the difficulties we have encountered and the lack of support Carrie has received from the professionals over the last 18 months we have become more and more determined to make a change to the services out there. No one should ever have to fight to get grief counselling, midwife and GP support. These should all just be available.
All of our lives have been changed forever and whilst losing Charlie was the worst thing to ever happen for us, he has made us all reevaluate our lives and realise what is really important.
I am so proud of Carrie and Charlie, there lives and their courage have inspired us all.