we have just celebrated our 1st birthday as a charity, in normal circumstances a birthday would mean just that a celebration, to us it means three things,

(1) Yes we feel we have achieved a lot in a year from talking with the Leeds east south CCG to talking with NHS bosses to newspaper interview's to radio interview's, we took a walk from Leeds to Nottingham over 66 miles in 24 hours raising important funds towards the building of Charlies-Angel-Centre,

 (2) The far most important one is we realised we are not alone and the bereaved parents and families over the country that we have come in contact with from Emails and social media learning of there loss and struggle when they have lost son's or daughter's, it also confirmed to us that our bereavement centre is needed and we will get there and our aims of helping other family's is so important to us,

 (3) From the moment we found out Charlie had a rare syndrome and was unlikely to survive our lives changed forever, people who had been in lives for a long time but also people who we new as acquaintances surprised us, some very close friends became distant as if we had some contagious disease, avoiding us at all costs then we had people who we hardly new offering there support, fractured friendships became the new thing, it taught us a lot about people and how selfish and cruel people can be, but on a brighter note along the way  we made new friends, new support networks, people who take us for what we are and support us in whatever we do, so thank you so much to those people whether it was though Twitter/Facebook/email/ text message or phone call because on some of those days you literally saved our lives