august/sept 2012
Today my daughter and i were returning to hospital , upon arriving we were in a waiting room, now don't get me wrong, i understand there cant be separate waiting rooms for everyone , but sitting there knowing that my grandson has a problem surrounded by pregnant ladies, who at any moment looked like they going to give birth kinda made me feel a little annoyed, what seemed like an eternity we were sent to see the consultant who preformed a scan and then his face said a thousand words turning to my daughter he said your baby we think has potters syndrome it rare but happens, your baby's kidneys are not formed properly so its not passing urine which means it can not produce amniotic fluid with out this fluid growth is limited the baby cannot stretch, lung development is compromised leaving them with very small lungs which in turn means the baby cannot breathe, Charlie's heart was also on the wrong side.
The consultant gave carrie options but the main one was to abort this pregnancy there is no hope, carrie refused and i supported her a week or so ago we were excited planning a life, planning her child's future, i fetl totally out of my depth the only thing i new was that research and supporting my daughter was all i could do, carrie was told weekly scans were needed but the the likely hood is that one week she would come and her son would have died  like most pregnancy's as time goes on you feel the kicks but with a potters baby as the fluid is to low there is little chance of feeling him kicking, i think we actually all left the hospital in shock we had no idea what lay ahead, getting home seemed to take hours in fact probably 30 mins and we took to the internet and searched potters syndrome seeing my daughter so distraught broke my heart i new i had to be strong for her and for my grandson and what seemed like a river of tears carrie felt Charlie kick, so might not mean to much to other people but it gave us hope that hang on he not giving up why should we, every one should have something to hang on to and carrie's words were while Charlie has a heartbeat and he's not giving up neither am i,, i was and am so very proud of carrie at 19 she displayed strength. courage and maturity beyond her years, this mother was fighting  for her child's life and we prayed on daily basis that Charlie continued to fight to.
http://www.charlies-angel-centre.org.uk/#!potters-syndrome/cgfi