A grieving family

Our family consists of a grieving mummy, grieving grandparents, grieving uncles, grieving auntie & grieving cousins.

We are no different to any other bereaved family.

We all grieve in different ways and at different times, sometimes we try to talk to each and say how we are feeling, but the painful reality is our family will always have one person missing.

Each year, at the end of September, begins a difficult process for us as this was the time we found out about Charlie's condition. October and November consisted of hospital visits, research and trying to be positive.

We are human and at times we all feel sad. There are the ‘what if's’ and ‘we wish things could have been different’. We cry, we get depressed, but there's no shame in feeling all of these things and asking for help if we need it.

This year will be Charlie's 6th birthday, every year on the 29th December we all get together. We try to do something that Charlie would have wanted to do, we talk about what he would be doing now, and what he would look like, this is Charlie’s day and the only day we take off from the daily running of the charity.

Charlie will always live on, his legacy we have created in his name has helped so many and will continue to do so for many years to come. For such a little boy he has made an enormous impact on the world.